Noah's Miracle
Thursday, February 28, 2019

Make No Mistake the Inner Bitch is Sometimes Dormant, but Never Dead

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It's been a long time since my last public blog.  Even though I blog a lot in my head, or on paper, and notes that swirl around in my...
Sunday, December 2, 2018

My House of Horrors

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It was the middle of August, and an ordinary day.  Our normal routine, my mom came over to assist me with respite and help with Noah and I ...
Wednesday, September 5, 2018

The Unapologetic Tully

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August always seems to be transitional.  Yearning for the last sounds of the locust before the leaves fully fall to the ground and as you...
Saturday, May 12, 2018

Dear Special Needs Mom (On Mother's Day)

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Dear Special Needs Mom, Today I stood and watched you lower a ramp from your vehicle, and get down on all fours to unlatch safety...
Wednesday, May 2, 2018

Special Needs Parenting: I don’t have time if you don't believe in Aliens and Unicorns

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"A friend once said I was delusional and I almost fell off my unicorn." As special needs parents have a profound understandi...
Monday, March 5, 2018

The Special Needs Journey: Moving Forward When Others Leave You Behind

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Special needs parents often report that they have strong feelings of being left behind. Relationships that once existed prior to their c...
Friday, February 2, 2018

A Real Life Episode of Black Mirror: Welcome to Electronic Visit Verification for Individuals with Disabilities

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It is like the science fiction anthology television series called Black Mirror.  A show that targets the unanticipated consequences of new ...
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Noah's Miracle
Noah Mitchell Warden was born December 23, 2008, weighing 9lbs and 1oz by emergency c-section at 8:51am. Noah did not breathe or have a heartbeat for the first 13 minutes of his life. He was taken to Children's Hospital in order to have a procedure done known as brain cooling in attempts to minimize damage caused by perinatal asphyxia. Noah's brain cooled for 72 hours after which time the hospital ran an MRI and an EEG to determine the extent of the damage. Unfortunately, the results came back with devastating news. Noah had suffered "global damage" to his brain. As a result the prognosis was grim. They said Noah would mostly likely never walk, talk, eat or even breathe on his own. Today, Noah has the diagnosis of hypoxic-ischemic encephalopathy resulting in spastic quadriplegia cerebral palsy with athetoid movements. Noah's miracle has brought our story to all of you.
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