Noah also got to try the Dynavox communication eye-gaze device this week. It's only a two week trial, which means he only gets to try it two times this week and next week before it goes back for a period of 45 minutes. Which to me isn't enough time to really tell if a product is going to be the right match. We also want to explore a trial with the Tobii Communication eye gaze and proximity switch, but his therapist reports that it will cost $400 monthly to trial each device. There's simply no way, and I'm hoping to advocate a way around that. And I have to know which device is the right match for Noah, as I only have one shot at asking Medicaid to fund it. And who knows if they'd approve the request, or deny it based on the price. I don't know. I suppose I'll cross that bridge when we get there. Noah was able to track a ball using the Dynavox briefly, Monday. So that's great, but I still think he's also capable of a proximity switch, he's gaining a bit more control over his arms.
Circumstances for us have grown more difficult and we are struggling to pay for Noah's out-of-pocket therapy and equipment needs. We applied for Wish Upon a Hero to attempt to locate help for Noah and they have given him a text-do-donate day. April 24th, 2013 if you text "WISH" to 80077, you'll be donating $5 to Noah's Miracle. I don't expect it to be a huge success, but we have to try. Please consider donating $5 by way of text for Noah on April 24th (tomorrow).
Our friends at 501st Legion - Mountain Garrison also stepped in again to help Noah this year, after hearing about some of our current struggles. We were invited to dinner, and met Deep Roy, the actor who played the Oompa-Loompa in Charlie and the Chocolate Factory, he also played in many movies including The Neverending Story, the Star Wars series, The Corpse Bride, Big Fish, the Pink Panther and many more. He was so kind, loving and full of great humor. It was truly a privilege to meet him. And it made for a wonderful evening. It's been a difficult year, and the love we felt means so much to us.
|Noah & Deep Roy|
We took Samson, Noah's service dog in training (SDIT), to Starfest to meet his 501st friends, and he did great. There were a lot of people in costume loaded with distractions and he did great. Samson was such the star that he even had his picture taken with the Gi-Joe Team! He's on lesson three and we hope to move onto lesson four soon, he's learned so much and has a total of 10 lessons before he leaves home for extensive skill training and certification/licensing.
|Samson & The GI-Joe Team|
Thank you all for your continued prayers for Noah.
Great Acts of Love are done by those who are habitually performing small acts of kindness.
Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.