As of late, I've been stewing over my frustrations, anger, sadness, and
disappointment surrounding the actions or even the lack of actions of
others regarding sticky situations that I have no control over. Today,
as God often does, stepped in and gave me a clarifying moment - one of
those moments that brings me back to the center of what truly matters -
and that is Noah's growth, achievements and the miracles in his life.
The rest is outside noise distracting me from my goal - helping Noah be
all that he can be. I don't have time to right all the wrongs. I'm
busy, that's God's job - and I believe he's good at it. I trust him and
willingly turn it over to him to handle. And I can take solace in
that as a general rule, most people eventually trip at what they simply
sweep under the rug.
For the first time in Noah's life I
witnessed something amazing. While working with his Feldenkrais
therapist today during an intensive session, Noah was in a 4-point crawl
pose and pushed through his knees using his back muscles in an attempt
to extend almost if one were going to try to get up or stand. His head
control was flawless, in one breath-taking moment I was in awe. My
emotions became centered, positivity flowed through every fiber of my
being. That's what matters - Noah and his progress. His miracle. He
had an amazing day from start to finish. Beamed at warm water therapy,
giggles in the grocery store, and showing me how strong he was at
Feldenkrais therapy. Today was one of his days to shine. And little
does he know he helped bring me back to my center of gravity. This
child is truly inspiring and I'm not just saying that because he's
mine. If someone really spent time with him - more than just a passing
at a park or a store - they'd see that this little blue eyed boy is
holding some heavenly secrets and qualities within him. Children with
Special needs are like that. They light up the dark corners of the
world. Some people see it - while others can't. But it is real. The
light that shines within them is so bright, so pure, so perfect.
Noah
is also making wonderful progress at his therapy school. Although we
missed several weeks due to illnesses within our family, he is
remembering his positive experiences. Since the fall class has started I
haven't seen one gag reflex yet. The feeling of the class is the right
fit for Noah. He seems to have made connections and feels
comfortable. A lot of work has gone into this improvement, from home
visits with his teachers, to us creating a social story to read to Noah
daily so he understand his daily routine and events, to planning
comfortable spaces within the room, to his own place to just observe and
watch children until he himself tells us he's ready and comfortable
enough to participate with others. Before we couldn't even park in the
parking lot without the gag and vomiting starting. We've come such a
long way in a short amount of time.
Little miracles continue to
happen at home today too, as I was writing this in fact I looked up to
see that Noah's little brother Luke found a very small hackey sack
basketball in the toy box he picked up and walked it back to Noah, sat
down carefully beside him, and gently pried his stiff fingers open to
place the hackey sack in his hands then assisted Noah's arm at the elbow
to help him lift his arm in order to mimic throwing it. Noah's hand
naturally released it and Luke continued to fetch the hackey sack and
repeat the steps. We've never played in this way with Noah, Luke was
not copying something he had seen a parent or even a therapist do. He
naturally knew this is how he'd have to help Noah play. God sent me
such a special soul in Luke - the perfect companion for Noah. He loves
and cares about his big brother so deeply. They are able to communicate
without words. And to be a mother just watching the innocence and pure
love of this interaction is just so overwhelming. I never take for
granted the little things, behind the little things means only greater
things are to follow.
Love,
Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.