After a very long day advocating and really being more "firm" than is in my nature I am told Noah's Medicaid has been reinstated and will show active within 24-48 hours again. I of course will still have to call to "dis-enroll him from Accountable Collaborative Care (ACC) when the system shows his Medicaid has truly been restored. My mother always told me you gather more bees with honey. But when you are dealing with government services no amount of honey in the world can sweeten them up to help you. Sometimes you just have to flip the "Bitch Switch" to be heard. Which really is terrible thing to have to tell special needs parents just starting out on the journey. But it's true. If you are too quiet, too nice, nothing gets done. And I hate more than anything that as special needs parents many of gain this really unfavorable reputation for being truly difficult people when all we are trying to do is advocate for justice for our child.
The workshop was emotional on many levels, at times it was a room filled with some really wounded hearts over our special needs children, we all share the same pain and are walking the same road. Anat has amazing insight, she is a truly gifted thinker and left me with many things that were valuable in helping Noah daily. Anat is kind, sensitive, genuine and straight to the point. So many of us are so desperate to "fix" our children that we forget the main goal is to "connect." I would recommend to anyone who has the opportunity to attend one of her workshops to do so, it might just be the fuel you need to keep going. Hopefully, one day Noah might have financial opportunity to be able to go to California to see Anat and her team. For now, we'll just try to keep doing what we're doing since we can't afford the big price tag that accompanies it.
I took Noah out to the mall yesterday, for some one-on-one time and left his brother with his grandmother for a little bit. It was nice just to be with my big buddy and give him all my complete attention. I bought him a new fishing hat for the summer since he's grown and some new swim shoes for warm water therapy. I tried on some clothes, even knowing I couldn't afford to buy them, he laughed and giggled at me in the dressing room. And I must say Macy's was amazingly awesome. The only store we went in that actively made a point to ask me if they could help me or assist me or if I needed anything at all. Most people everywhere look past Noah and I. I've grown rather used to it in a way. So it's always such a kind surprise to feel like the world sees you and cares about you. Thank you Macy's for making me feel like a valued guest in your store, even with an apparent disabled child by my side! I'll likely go back to that store, even if I don't need to purchase anything at all, just because they were so friendly to me.
"I have different hats; I'm a mother, I'm a woman, I'm a human being, I'm an artist and hopefully I'm an advocate. All of those plates are things I spin all the time." - Annie Lennox
Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.