|Noah waiting to see his power wheelchair|
It cost us a private independent evaluation out of pocket. But in just one evaluation appointment we accomplished more than we did at the previous five appointments. Which makes you feel like they were simply milking Medicaid funding. Finally, a therapist evaluated Noah who understood the research backing the benefits of early mobility for children. A recommendation was given, paperwork submitted and then the Medicaid approval waiting game.
I fully expected to have to challenge and appeal some accessories for the power wheelchair, like the stand attachment for Noah's Tobii eye gaze device, or the parental remote control that disables Noah from driving when we want to take over. But much to my surprise Medicaid didn't deal me any fits. It was ordered and delivered to be customized for Noah a two days ago.
The appointment was really exciting. We had waited over a year for this day to finally arrive after all that it took to find another way to get someone to believe in Noah. His custom Aspen seat will be transferred back and forth from his Koala Permobil Power Wheelchair and his Zippie base. His headrest was adapted with a head switch on the right hand side which allows Noah to stop and go with his cheek. And he turns left and right by using each of his legs. At first I wasn't really sure about the head switch. We played around with it realizing that if we put it on Noah's cheek instead of his head that he didn't have to turn his head to go and stop but merely just put his cheek to the switch and still be able to look in the direction he was traveling in.
|Noah's power wheelchair|
|Noah working on left and right turns|
|My future is so bright that I need shades!|
And this is about Noah's victory, not how hurt I was by what a therapist said or did. Noah is a soul that goes about his success rather quietly. He has been proving all the naysayers wrong since the moment he was born. And he'll never have to worry I will always believe in him.
Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.