It has been almost six years of Noah's journey with Cerebral Palsy.
Noah now a young boy, is cognitively very aware that he's trapped in a challenged
body. A voice that wants to get out, a body that craves to move and a
desire to demonstrate his perseverance. He now understands the
difference of being loved and being shunned by others. Which makes it
more important that ever to spread awareness about Noah's diagnosis and
what that means for him and others affected by Cerebral Palsy.
Battling
rejection is hard for any of us. It can be incredibly damaging on your
self-esteem. We can quickly convince ourselves of lies that are fed
to us by the suggestion of others: I'm not loved," "I'm not accepted,"
"I'm not worthy," "I'm broken," "I'm ugly." When this happens it can
cause emotional wounds that are sometimes hard to overcome. Even
harder for a child with a disability that is fighting an uphill battle
physically to feel as if the world not only has this negative perception
about you, but also refuses to accept you just the way you are. A
child that very much understands what you are saying, even though he
cannot verbally respond, A child that notices your stares, but lacks
the ability to to reach out and hold your hand to show you he's a
precious human being. A child that cannot run or walk to prove he's
worthy of being considered an equal to your own typical child. That
child, that amazing wonderful child is my son, Noah.
“When you're different, sometimes you don't see
the millions of people who accept you for what you are. All you notice
is the person who doesn't.”
Jodi Picoult
I find myself no longer able to protect Noah
from his understanding of the cruelty that others can aim in his
direction. All I can do is encourage him not to fall pray to the
population who doesn't yet understand his disability and realize that
Cerebral Palsy is secondary to the incredible little guy he really is.
World CP Day grows more important for us as a family each
year. By bringing awareness to what CP is, how it effects a person, and
what that means for them and for others around them is critical. If
you can sway just one person to change their perspective of someone they
see with CP, how they treat and act around someone with CP, to educate
them that CP is not a disease and nothing to be feared. Then that is
one less person who has the power to reject someone like Noah.
Noah deserves to be valued.
Spreading awareness is so very important. Awareness = Love = Acceptance.
Acceptance
doesn't mean you deny that Noah has severe disability, it simply means
that you accept him regardless of his disability. You are able to see
that while he's different, he is not less. Acceptance
means you acknowledge that he's worthy of being loved, of having great
value in this world. Acceptance means you don't need to say something
nasty or mean and stare, but rather approach him with love and
encouragement. Acceptance means you don't fear what you don't
understand or aren't familiar with.
We each have the power to make a difference in the life of another and awareness is key.
Love,
Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.