Noah's little brother was exceptionally excited for Valentine's Day this year. His awareness of holidays has increased now that he's older and realizes that holidays are gift giving days. Luke's excitement fuels Noah's excitement and he reads his little brother's energy in anticipation of fun. Luke is still in a phase where he wants to wear identical clothing to Noah. It's really cute on how much he really wants to be like his older brother. He'll search his closet to see if he can find something that matches Noah. So it was really cute that a business called Adorabelly Design made matching Valentine's Day shirts for the boys. One shirt with a blue truck and the other with a green truck each hauling hearts. They were perfect for Valentine's Day. Adorabelly also does a lot of other custom items, and specializes in G-tube covers. You can check out the store at this link.
was gifted with the sweetest butterfly cookie holding a heart from the
Butterfly Fund and Mia's Cookies and received Valentine's Day cards from
Angels Sending Hope. Both were the most touching gifts. There are
days... most days in fact where you feel that you and your child not on
anyone's mind. So when something like these beautiful packages of love
find their way to us, it's really a reminder that someone out there
cares. And we need that. Most importantly Noah needs that. To have a
severe disability like Noah has, and to be non-verbal and be cognitively
aware and essentially trapped in a body that doesn't work for him, is
understandably frustrating at times for Noah. I can read it in his eyes
the yearning to play with toys that his brother has, or aches for the
world to see him, like the world views his typical sibling. As Noah
grows older I fear he feels like he's in the background, even though
he's very much front and center to us.
Noah is really into books
at the moment. He could have someone read to him non-stop all day long
and not get tired of it. He's also make great efforts to learn how to
spell on his AAC device. Who would have ever thought Noah would learn
to spell words. But we are working on a literacy program and of course
reading books with him as much as we can will help him to learn to read
and spell words. I kind of wish there was a an adaptive chair that was
made for a parent and a child to sit in together. We sit Noah on our
laps but he slouches and I can tell sometimes the way we have to hold
him might bother his hips and sides of his legs, he arches to
re-position himself. It would be neat if there was a couch designed for
families like ours where we all could sit and cuddle together
comfortably and read. But even if something of that nature existed I'm
sure it would cost as much as a new car, and wouldn't have an insurance
code for funding.
I watched Noah's daddy read to him nestled up in the same
recliner chair that we used to use when we bottle fed him as a baby in
his nursery, today. And I love my spouse, my partner, Noah and Luke's
daddy more and more for the person he has been all these years and the
incredible love and devotion that he has. I couldn't do this without
him. And I genuinely mean that. Noah takes the very best of the two
I love you
for all that you are
all that you have been
and all you're yet to be.
Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.