
 
When looking back on your own family traditions there is a natural 
desire to pass them down to the next generation.  We'd put up the 
Christmas tree on Thanksgiving or sometimes the day after if Dad 
thought it would seriously stress out Mom while cooking dinner.   Each 
child would be allowed to open one gift on Christmas Eve.  My paternal 
grandparents would literally load us up with full-sized varieties of 
Hershey candy bars to give us a sugar rush for the next twenty years.  
We'd do the occasional cookie baking and hot chocolates, egg nog and 
cheer.  I'd spend time playing new Christmas songs I learned on the piano each year. We'd be up hours before the sun, sometimes the over-eager 
little me even up at midnight trying to pry my parents out of slumber in
 order to go through what Santa had left.  All the while my mother 
convincing me that I must have interrupted Santa and if I kindly went 
back to sleep Santa would come back and leave more.  To my dismay there 
wasn't any more in the morning than there was at midnight.   Santa would
 leave stacks of unwrapped toys one section of the room was for me, one 
section of the room for my little brother.  In our stockings we always 
had one giant apple and one giant orange with a single chestnut for good luck.
Santa was always good
 to me, and filled my childhood years with magic and love.   I had hoped
 to pass down so many of my memories and the way we did things when I 
was a child, because it was such a beautiful time in my life.  But then 
Noah came along and changed everything.  The way we do the holidays 
entirely.   
We didn't get home with Noah until January 9th, 2009.  All those years ago in a blog so fresh and new I wrote:  
The day Noah was born his daddy bought him an outfit in the hospital 
store that says "Special Holiday Delivery"  and matching socks with 
holly.  We plan to put him in it tomorrow, and celebrate with a late 
Christmas.  We're going to open presents together - the three of us!  I 
just pray this feeling lasts, and that Noah comes home to stay for years
 to come.   
.JPG)  | 
| Our First Christmas together celebrated January 9, 2009  | 
Noah still heavily medicated was in and out of 
sleep when we did our make-up Christmas.  But I remember it just like 
yesterday, holding him in my arms in my pajamas the three of us by the 
Christmas tree.  Things got harder the second year.   Noah still was 
very much a distraught little baby.  He cried often and frequently 
nothing made him happy.  I sure tried.  I tried everything.  Realizing 
that things were overwhelming for him, there was no ability to attend 
family gatherings, and we decided we were not able to leave the comforts
 or the safety of our own home.   A few family members visited us, but 
only for brief amounts of time in order to ensure Noah wasn't 
overwhelmed.   By the third year we started to realize that some parts of Christmas 
were actually one of the few things that seemed to calm and comfort 
Noah.  The tree went up early, lights, songs, Christmas movies.  
Whatever it took to keep him happy.   But how we went about the holidays still was different from how I ever dreamed it to be.
.JPG)  | 
| My Special Delivery and the Best Gift I've Ever Received  | 
I longed for what felt
 like broken childhood traditions.  I couldn't really give Noah an apple
 or an orange, he couldn't eat solid foods, he couldn't unwrap his own 
gifts, he couldn't even get me up in the middle of the night to say 
Santa had come.  I wanted it, I still to a large degree want it.  But 
I'm learning that I can reinvent the holidays with a child that has 
special needs and that it is okay to start new traditions that fit his 
needs and us as a family. 
Instead of an apple and an orange, 
Noah gets cotton candy and fast dissolving chocolates.  We put the 
Christmas tree up weeks before Thanksgiving even hits.  He has his 
trains, switch toys and Christmas books and movies to entertain him.  
And allow him the freedom to make a mess of the ribbons and essentially 
un-decorate the lower branches of the tree on a regular basis.
Each year we 
seem to incorporate something new to grow as Noah grows with his 
abilities, likes and dislikes.  And are doing a night before Christmas 
chest for both the boys this year.  I found these cute little chests at 
Hobby Lobby, and I stuffed them with all the essentials you need the 
night before Christmas; a set of holiday pajamas, Christmas movies, 
coloring books, reading books, sensory activities, fast dissolving chocolate Santa and 
an apple juice box.  I painted each child's name in nail polish on the 
boxes since it was all I had on hand.  I made it work and poured a lot of love into each of them.  Making new memories for me and for the boys.

 

 

 
I'm finding if I can find 
new ways to make the holidays fun and work for Noah and us as a family 
then it doesn't matter the traditions that either Chris or I had as 
children.  It's about our children not what necessarily was a part of 
our childhood, but what our children will remember most about theirs.  
And by reinventing the holidays I'm building memories they can both look
 back on and say remember when... 
Love, 
Noah's Miracle by 
Stacy Warden is licensed under a 
Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.