|Noah in his New Hi/Lo Chair|
|Noah's Hi/Lo Chair without Tray|
The equipment vendor also brought Noah a trial walker but it was too big, so we'll have to wait on a smaller model. I remain hopeful that it is still a piece of equipment that might work for him. We're also trying to troubleshoot more recent problem development with his Britax Boulevard car seat that he has now started to get his head out of the headrest blocks and leave his head hanging sideways while I'm driving. Something both scary and a huge safety concern. It sounds like a appointment is likely in our future to explore some options. We don't have a handicapped accessible van and we can't afford one, so a car seat is our only option right now. We will also need to give some thought in the bath chair department for Noah as I think he's really outgrown the First Steps Baby Highchair that I was using in the tub for him.
Our house feels like it is closing in on me - literally. Noah's pieces of equipment are cumbersome and heavy and we lack wide doorways, and hard flooring in our home and even the storage or a place to house all of the things he needs for daily living. It takes two people to lift his feeder chair or stander anywhere which means they are pretty much stuck in a particular room and stay parked there. I need a mudroom for the dogs so I can eliminate the baby gates... we need a ramp... we need a handicapped accessible house and our current home is anything but. Dear Santa please bring me a house stretcher and handicapped accessible home!
We are growing increasingly excited about the arrival of Noah's Service dog. We've think we have a name picked out pending that the company feels that they've chosen the perfect dog to match with Noah. And it still looks like Noah's dog will arrive around his birthday or the week of Christmas. It of course will mean lots more hands on work for me as I work with this dog to pass puppy good citizen weekly training tests until it leaves home for many months for advanced skill training and to pass all testing and obtain certification. Which I am sure will be hard on Noah and the family emotionally as I know we will fall in love only to be a part for many months. But hopefully our love and sacrifice will bring great rewards.
Noah is ready to gobble down a big Thanksgiving dinner in a few days. I got Noah a little shirt that says: "I'm thankful for pie with extra whipped cream, turkey and mashed potatoes, and seconds please." Although Noah still enjoys his Thanksgiving pureed he sure does love this time of year and chows down with the best of them. And now he has a safe chair to enjoy his meals in. Dear Lord, as hard as this all is for me, thank you for answering that prayer.
Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.