We took Noah out in the backyard for the first time to try out his special needs Cerebra Sled. Noah has never loved the snow, the cold weather, or the glare of bright white surroundings, but as soon as we strapped him in his 5 point harness sled, his face lit up with a big smile and the laughter followed. This sled was a huge hit with Noah. His dad just did circles in the yard. Noah was all bundled up like a giant ball of fabric, having the best time ever.
This sled is
amazing! It glides perfectly through the snow. It was easy to load
Noah into it and buckle him in - even with gloves on. It has a good
center of gravity and didn't tip to either side. People might think
that fundraising for a special needs sled is a waste of time and energy,
but to see him be able to participate in a simple winter activity that
typical children do, means so much - to him and to us as his parents.
We want Noah to be able to participate in everyday activities the best
that he can. To enjoy life, to find laughter and pleasure in all
aspects of play.
We had hoped to build a snowman, but our
temperatures have been too low for long-term exposure outside, so we had
our ten minutes of fun and came in. The perfect snowman still awaits
and since we can't seem to catch a break from the snow I'm sure we'll
have plenty of more opportunities later on.
services inquired about some of our out of pocket costs last year - when
I told them about the purchase of Noah's sled I got a big laugh on the
other end of the line, followed by "what for?" I rarely am able to
think of quick comeback for people's off the wall assumptions when it
comes to children with special needs and the perception that they can't
possibility join their peers in regular activities.
the fact I would have told this caseworker, about all the health
benefits that winter play can offer a child: Things like being outdoors
even in winter months, helps reset circadian
rhythms (circadian rhythms refer to your unique body rhythms of waking
and sleeping in sync with the rising and the setting of the sun, and how
the benefits of natural light and fresh air serve
to not only improve physical health, but also emotional
health. And bonus it helps Noah with proprioceptive and vestibular
sensory input, while also increasing
attention , focus, postural stability and gross motor coordination.
know that's a lot of therapeutic terms... in short it just means it
helps Noah find his center of gravity and improves things like balance,
trunk and head control. And provides Noah the ability to self-calm his
spastic tone to aide in more intentional type movements. So it's not
only recreational family play, but yes, built in therapy.
of course would disagree and reminded me such items are not worth
pursuing or funding. I'm convinced it's going to take a long time for
society as a whole to get up to speed on what truly matters in the day
and a life of a child with special needs and the potential of what is
possible if they have access to things that make them capable of
Until then, I'll just blog about all of the gains
Noah is making as a result of a lot of love and help from others and a
parent's mission to find all ways of helping him.
People are kind of like
snowflakes. There is no one like us; we all have different skills or
designs that make us who we are.
Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.