Thursday, April 30, 2015

Another Door Closes

Bookmark and Share

Today was Noah's last day at warm water therapy.  His therapist has retired.  My hope was that they had plans on replacing her.  I still have hopes that they do, but so far after four months of advanced notice they haven't sought out a replacement to hire.   Noah is very smart, and I didn't have that conversation with him - I didn't have the heart to say this is your last day doing something that you love.  For the last 4 years and 8 months of your life you've come to expect this as part of your routine.   And now it's gone - maybe even forever.  
Noah Excited about Warm Water Therapy
So I quietly put on his swim shorts, knowing this would be the last time for a long while, without him really knowing why.  I couldn't find the words to say this is the last time you'll be seeing her - because he gets so happy and squeals with delight.  How does a mom to a special needs child explain why people come and go from your life?   And how one day you can lose something that you love doing? 
Noah working hard putting grasping & releasing knobbed puzzle pieces
It seems unfair of me.  While I've grown accustomed to people walking in and out of my life frequently since Noah's birth, I have learned to accept that there is a reason, a season, or a lifetime for all relationships that come my way.  Although I'm not sure I've found anyone in the lifetime category (I have guarded hopes for a handful) but expect given a tragic circumstance or if I were to ever call upon them for help they'd realize I'm too much of a burden in their life.   But how does one tell a six year old that therapists have a job, and while they care about him, they simply move on to other things?  Forcing him into building new relationships or having that void that goes permanently unfilled.

It's not easy for Noah, he gets attached easily to routine.  Change is hard for him, he doesn't adapt often well.  Sensory challenges present themselves heavily, his tone gets more extensive and rigid as that is his primary way of expressing his emotions is through his body movements, his moods sometimes can be incapable of soothing and unpredictable as he adapts to change.  And his bruxism can reappear.

So I opted not to tell him.... but he will figure it out.  Maybe not next week he'll simply think we're on maybe spring break vacation.  And if they do find a replacement he will question for sure where his therapist went - a familiar pool without a familiar face. 

All I could think to do was get online and order him his favorite soothing activity to keep him occupied when he starts to get agitated by his change in routine.  A case of 48 Jumbo Coloring Books from the Dollar Store to keep him busy, shredding and ripping them apart.  $68 with shipping and tax - thrown away money really as he can rip at least one apart a day in less then 1/2 hour.   But needed as it is one of the only tools I have - his favorite UK television shows and a case full of jumbo coloring books to get through his coping mechanism with change.

Shredding Jumbo Coloring Books
Accept what is, let go of what was, and have faith in what will be.


Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.

Wednesday, April 29, 2015

Little Bird: Part 2

Bookmark and Share

The perfect distraction for all that feels problematic and unresolved is Noah.   He loves hippotherapy.  He loves really any therapy that feels recreational to him.   He's been doing a combination of multiple therapies daily.   We recently started a new therapy with him back in October called MNRI (Masgutova Neuorsensorimotor Reflex Intergration).  He's been responding tremendously well to it.  We have noticed a big difference in his range of motion skills, hand coordination, and trunk and core strength.  He seems to find his sessions very soothing and is content and relaxed.  Shortly, thereafter we do hippotherapy on the same day.  Maybe it's the combination of the two, I'm not really sure, but Noah has been doing things he was never capable of doing before.  Each week little improvements, but this past session was nothing short of a Miracle.

Noah's head, neck and trunk control was perfect.  Not one head dip, looking side to side, sitting tall.  It was amazing.  He's never been capable of anything close to that before, and he really maintained it for the entire half hour.  But that wasn't the only thing.  Noah spoke.  Words that were crystal clear.   And I wasn't the only one who heard it; three volunteers, the therapist and myself all heard it.  Indisputable we all weren't imagining it.    The words "Walk-On."  Something every child is encouraged to tell their horse to get it to go.  I don't know if I'll ever hear it again.  I hope I do.  I keep thinking if he did it once so clearly that he'll do it again.  We all were in awe.  One of those pinch me moments, I must be dreaming.   It wasn't even mumbled or slurred.  It was how I always imagined his voice and words would sound if he was verbal.   I wish I would have had that moment in time on video.  I keep replaying it my mind over and over, with a bit of disbelief but it really happened.   It was real, we all heard it, we all recognized it. 

Noah's skills at home are also soaring.  He's always been able to roll, but now is moving faster by the day.  He can get from the living room down the hallway and to any bedroom or closet within ten minutes or less all while closing doors behind him using his feet and arms.  He's even learned how to get under beds and hide.  And he's so incredibly pleased with himself, often getting agitated if he suspects I plan on moving him after all his hard work. 

Perhaps he knows that I am simply in desperate need of some beautiful distractions to keep my mind from dwelling on the complications that come along with special needs parenting. 


Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.

Tuesday, April 28, 2015

Little Bird: Part 1

Bookmark and Share
I sat at the window today for a really long time watching it rain trying to listen to the soft patter against the glass.  I was aching for something - anything to speak to me.  Send me a sign, send me something to tell me I am doing a good job.    I ached to see a rainbow but it never came.  Just heavy white and grey clouds looming in the distance.  Emails after email with bad, and complicated news.  Always another battle for me to fight, conquer and overcome.   It's never-ending.  It's heavy.  It's hard.   At the very center of it Noah completely dependent and relying on me to succeed.  And trying with every fiber of my being not to short-change my little sweet Luke at the same time. 

A bird perched on the feeder and stared at me.  With the feeder empty it nodded twice as if it understood and flew away.  They say that faith is a bird that feels dawn breaking and sings while it is still dark.   Was it my sign... the bird?  I certainly don't have it all figured out.  I'm searching just like the next person for all life's answers. 

The state has denied Noah's need for disposable pillowcases.  Something that in multiple emails were promised, I even jumped through all the hoops they told me to - obtaining a doctor's prescription and then yet another one because they found that one insufficiently documented, more documentation submitted proving that a non-traditional pillowcase of any kind would make the anti-suffocation pillow ineffective and dangerous.  Denied reason:  Caregiver Convenience.   Appeal they tell me.   More work, more time, more paperwork, more time taken away from caring for my boys because I am always waging war.  

After having worked in the legal profession and one my many college degrees being a legal degree I'm quite comfortable with the legal system, where many special needs parents simply aren't.  This process overwhelms them (understandably) so they retreat and don't often go on to pursue the appeals process.   There aren't many parents like me that know how to draft pleadings; motions, responses, replies, and know the timelines for due dates and court filings.   Yet, I can't say I enjoy the process any more even though it's a familiar one to me.  It's time consuming and rather exhausting to continually pursue this as my only recourse to obtain what Noah needs. 

And I can guarantee that any Administrative Law Judge that gets this appeal is going to really question why the State is wasting time with a pillowcase denial, something that isn't going to even likely cost the state more than $200 yearly for Noah.  And I can toast them so easily on this issue, I have all the indisputable documentation that supports the need for disposable pillowcase need for the anti-suffocation pillows they funded.   I did find an alternative option, a different anti-suffocation pillow that has it's own re-washable pillowcase - a differently designed anti-suffocation pillow with the same safety features.  It would likely cost the State about $76 dollars a pillow.  Noah needs 2 of them.  And obviously would save them money in the long run without having fund disposables.  They said they would consider it, but I fear another lie as they discouraged me from holding off on filing my appeal, but I know very well that I'm up against a deadline to file - one that I cannot miss while they lure me into not preserving my appellate rights.

And this all of course builds a tremendous distrust with the very caseworkers and professionals that claim to be on my side.  When all you do is deny what my child needs I see you as the enemy - not someone who is in my corner fighting to help my child.   The State received verification that a home-remodel upstairs for a modified bathroom would be $40,000-$60,000 from a local contractor and claim that is all they need to now resubmit the stair-lift request.  One shall see, it's a continual hoop that they make me jump through, we're in May I have to burn up Noah's funds by December.   Sounds like a long time but it's really not, I've been working on all of these current issues and requests since the beginning of January, and I'm no further along nearly half-way through the year.

And to add insult to injury I was at Noah's hippotherapy standing in my own little corner watching Noah ride, six other parents engaging and having a conversation together about their children who were all in a class together discussing how each of their children were on the CES waiver (Child Extensive Services Waiver) the same waiver that Noah is on, the same waiver handing me a handful of denial difficulties - bragging about how great their services were and all that they were getting.  Parents forthcoming with each other about diagnosis; children with a combination of high functioning Autism, Aspergers and Dyslexia.  And as hard as I tried I could only detect maybe one child with a slight behavioral challenge - otherwise you would never know there was anything "extensive needs" about any of these children.   No adaptive equipment needs, no speech concerns, no home modification needs.... yet they're all fairing out better than I am apparently with financial resources,  as one parent said she is allowed to use her entire $37,000 just on respite care.   Noah on the same program respite max is $14,999.  And last year as hard as I tried couldn't access over $18,000 of Noah's funds, and the State pocketed the rest of it.  I'm sure a double standard.  Aren't things typically that way in life?  While I'm happy that other parents are finding the financial help and resources that they need, I can't help but wish my child was too.

I just listened and then quietly left without being noticed (I'm pretty invisible to most anyway when you have a child as severely disabled as Noah).  Even amongst other parents who have special needs children if their children are better off than Noah, I'm typically not on their radar.  The sting from the overheard conversation was temporary as I was celebrating a miracle that I just witnessed...


Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.

Tuesday, April 21, 2015

Power of the Peach

Bookmark and Share
Noah received an invitation to attend Denver's Choose Kind Super Hero Peach Party which we attended last Saturday.  Last year Noah received a very special pair of hand painted shoes from the non-profit organization Peach's Neet Feet.   The founder, Madison Stiner-Atkins (aka Peach), is expanding her beautiful efforts into hosting Peach Parties, a multi-state traveling tour, to bring those in the special needs community together.  A celebration of love and kindness wrapped up in one room. 
The entire family unit is invited, siblings get to engage with other siblings who have the same understanding of what it is like to grow up with a special needs brother or sister.   Parents who have an unspoken appreciation and awareness of the journey we are all traveling gathered together to enjoy each other's company and celebrate the beauty of all our children.  And at the heart of it, Madison - a very special woman bringing us all together.  We don't get a lot of invites having the special needs family dynamic that we do.  So we were rather eager to go. 

I always have a strong desire to meet those that make an impact on Noah's life.  A village is an understatement.  I've never forgotten not one person that has entered our lives and made a difference.  Without them I would be lost, and Noah without the love he needs to grow from an often cold and cruel world.  We thrive and grow on kindness that comes our way.   So it's an extra special event when you get a chance to meet some of the very people along the way that have lifted you and your child up.  Those that made us smile, those that reminded us to keep advocating and fighting for what matters, to pursue and never give up on our dreams and believing in Miracles.  And most importantly to remember that we are loved and accepted just the way we are. 
As soon as we entered the room to the party, we were greeted by Madison's mother.   She knew us and Noah by name.   Something I didn't expect.  Something that made me feel like we were so welcomed and wanted.  And it wasn't just Noah's name she knew.  Madison's mother knew each and every child that came through those doors.  We were not just a pair of painted shoes her daughter had given away, it was as if we were family.

Madison was just as lovely as I had imagined her to be.   There isn't an ounce of apprehension about holding or hugging a child with special needs.  She loves them.  Genuinely loves them.  Such a wise and old soul for her tender age you sense an incredible wisdom about her.  Although not yet a mother herself she has adopted all of these children into her heart.  They flock to her as a light that shines bright.  It was fascinating to witness and tremendously inspiring.

Noah and Madison having a serious conversation
The boys were given two special capes that had the words Born to be Awesome on the back.  Noah carried his over his wheelchair, Luke strapping his on immediately to become an instant sibling superhero.  Lots of smiles and excitement followed.

There were endless tables with different activities for children to engage in.  Decorate your own cookie table, balloons, bracelet tables, painting shoes table, paint collages positioned on the floor for easy access for children with limited mobility, sticker tables, painting plastic stained glass art, coloring your own pillowcases... and a very special guest appearance from Cinderella and Batman!
The children were able to decorate their own goodie bags, and gather little toys and trinkets to take home with them.  Something the boys are loving days later. 
Mommy & Luke coloring a pillowcase together
The Peach's Neet Feet Goodie Bag
Ironically I think both Noah and Luke were enchanted with Cinderella.  They sat intently and hung on every word she sang.  How can one not love a princess?  Especially one that stamps your hand with a glitter wand and tells you to pose like a princess for pictures.  She was quite the sweet guest.  I admit I kind of wanted to take her home so she could help me keep the boys happy all weekend long.   I now see why Cinderella is so popular in her Kingdom. 

Batman was cool too.  His superhero poses were fun and entertaining.  And the boys love anyone who will read to them for circle time.  The experience made me want to expand upon my children's very limited experiences.  To make their dreams grow big and strong.  I'm sure someday they'd very much love a place like Disneyland with lots of characters to engage with.  It's tremendously beneficial for Noah who can't walk or run, he requires a lot of visual stimulation which was a perfect element to the Peach Party.  Madison put so much effort into making the best party she could.  She made it a beautiful day for so many families.  Building memories and making new friendships.

If you'd like to learn more about Peach's Neet Feet you can visit their website here.   If a Peach Party comes to your town, I highly recommend the event.  You will have the very best time.

A little spark of kindness can put a colossal burst of sunshine in someone's day.

Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.

Thursday, April 16, 2015

Designed for Failure

Bookmark and Share
When I tell you that each day I am faced with an incredible challenge when it comes to helping Noah, I'm not exaggerating.  I'm not fluffing the truth.   I balance between fifty to seventy emails on a daily basis all dealing with Noah.   I have had seven phone calls today, between county services, nutritionists, following up on doctor's prescriptions and returning calls that I pray lead me to avenue of help for him.  I am exhausted.  I am worn, I am tired.  And I can't stop.  I don't get the opportunity to say screw it all, I'm done and close the door, because then where does that leave Noah? 

I can tell you where it would leave him. 

It would leave him without therapy
It would leave him laying on the floor all day long because the world thinks he doesn't need a feeding chair, or a wheelchair, or even the right to get better with walkers, crawlers, or standers
It would leave him without the creature comforts we all take for granted
It would leave him without resources to participate in life
It would leave him with access to his own home that he lives in
It would leave him without a way to leave the walls of his own home

I have this stupid fallacy in the back of my mind that someone is going to come to my rescue.  But no one ever comes.  So I sit here with my tears, crying as I type a blog, which means nothing to anyone but me.   My pain as I carry it alone.   No one can feel it, so they read it and move on.  And I know I'm simply a statistic, one more mom, one more family lost fighting the system for their disabled son.  As my youngest wipes my tears and tells me how sorry he is.   When I should be the one telling both my children how sorry I am that I can't do a better job fighting a broken system, to find us help and financial assistance. 

Today I was notified that the State has denied Noah's stair lift to the basement to allow him access to his handicapped accessible bathroom in that they just funded in the basement.  But it's not because of what you might think.  It's not because the request was too expensive, or that it isn't a medical necessity, or that there is no reason for him to need a stair lift.   This is the good part.  The part that blows my mind because it makes zero sense to me, other than someone is purposely playing games with me.

It has been denied because the State wants me to invite two more contractors into my home to give me two more estimates on how much it would be to build Noah an en suite from his bedroom to create a bathroom yet a second bathroom for him, rather than fund a stair lift for the bathroom that they just funded. To build an en suite would eliminate on bathroom, a laundry room, access to the garage to get Noah into the van, a two storage closets, creating the need to relocate a laundry room to the basement (where the current handicapped bathroom now is) a new entry into the garage and relocating all plumbing and eliminating a closet for Noah's clothes and supplies.  That all sounds like a terribly good idea and cheap too right?   And so logical since they just funded a modified bathroom request less than six months ago.  Another bathroom on the main floor quote could easily cost the state 40-60K, when they only give Noah 37K a year to help him (which he doesn't get to even utilize it all because they deny most of my request so they keep a large majority of that 37K)  Which is why the State said put it in the basement to begin with upon recommendations of multiple contractors and a certified Occupational Therapists report.  And what does a second bathroom upstairs even have to do with the fact that we need a stair lift to get him to the basement where the bathroom they just funded now is?  We're going backwards.  Noah has a bathroom he needs to get to which meets 100 percent of his needs and it's in the basement.  He doesn't need two bathrooms he needs one bathroom and one stair lift to get to that bathroom.  It makes no sense to get two more bids for another bathroom just to meet justification to get a stair lift.  I am asking for a stair lift I am not asking for another bathroom.  Why on earth do I need additional bids for another bathroom?

It's a stall tactic one of many they're going to do so that we get to the end of the year as I've tried to jump through all their hoops to say whoops we'll have to consider this next year, and thank you for just allowing us to pocket all of Noah's funds that we didn't let you use while we made you try to chase the carrots we dangle in front of you.  It's funny to them.  They did it last year, they're doing it again this year. 

And if you think it's going to ever get better?  Likely not.  It's going to get worse.  There is in fact a new Bill being heard today, Bill HB 15-1318 to Consolidate Intellectual And Disability Waivers which people should take notice of because employment services are not included for disabled adults and there is no mention of implementation on how consolidation would work, the number of families it would put back on wait lists and the amount of time to get help to these families. Or even the families that would no longer be eligible for help. Remember Noah started with a 7 YEAR WAIT LIST! And that this bill proposes 1.5 Million ANNUALLY cost to manage which is money that could go to families and individuals in services that are on the wait list. This money will create jobs for the state system or consultants but isn't designed to help the very families that are struggling.  That we no longer have a say in what our child needs or that we have no room to negotiate what is funded versus what is not. This will take away from our children's needs. It's helping the government it's not helping our children. 1.5 Million dollars needs to go towards helping them, not to assist the state in getting financially fat and happy at the expense of our children.

When am I going to be able to wake everyone up from the illusion that children like Noah are well cared for by government services?  What does it take for me to scream it from the rooftops before you hear me?  Before you understand that I'm charging thousands of dollars in debt to get him necessities like a wheelchair, to pay for his out pocket supplies, adaptive equipment and needs.   When I am borrowing money and taking cash advances from anywhere I can find it for his therapies, which lands me in overdraft charges and this vicious cycle that is so close to flushing us down the toilet.  Because I don't know what else to do.   And the help that is supposed to be there - isn't.  It's a joke.  It's pretend.  It's made to make people like you believe that families like ours are okay.   The world harshly criticizes me and says I'm painting myself as a victim, when they have no idea that I'm the biggest fighter you've ever come across.   But I fight, and I fight and I fight some more, but I am only one person.   And I have to fight alone.  I have always been an army of one.   No one will stand with me on the front lines.   I am alone.  I am Noah's mom. 


Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.

Wednesday, April 15, 2015

All My Swirling Thoughts

Bookmark and Share
There has been so much on my mind lately, that I find it often difficult to really articulate the seriousness of things behind the scenes.  To find the proper words for things I cannot fix, for all the bothersome and complicated problems that I deal with on a regular basis in fact.  Behind my seemingly blog silence brews a whole bunch of stuff. 

Although I've been slightly mute regarding the challenges we continue to face with obtaining government benefits for Noah, Medicaid denials, financial struggles... it's all there.  It never goes away.  Yet sometimes you feel like you're this broken record that plays the same song over and over again.  I myself growing weary of it, wishing that somehow, there would be a better way.   Although I do win some battles I tend to lose way more than I win. 

For instance Noah was granted two anti-suffocation pillows under his Medicaid Extensive Child Waiver, which were expensive over a $100 each shipped from the UK (the only place that manufacturers them).  That required me obtaining not one but two prescriptions from his doctor as the first one was deemed insufficient.   They were ordered which was great, delivered timely - hooray for small miracles.   I opened them only to find this folded up mesh-like material which confused me.  I read the instructions only to find out that they were two disposable pillowcases - that were required for use as traditional pillowcases that contain cotton or polyester - silks even prevent the anti-suffocation pillow from working properly and makes it's safety features moot.   Something I didn't obviously know prior to the request for ordering the pillows or I would have included the pack of 50 disposable pillowcases that were required for the pillow use in the original request.   And although Noah's CES Waiver had zero problems approving the pillows themselves, are dragging their heals at best (I'm being generous here with feelings),  and another two prescriptions later from a doctor are still telling me that the request is inadequate for approval.  I have since faxed them a copy of the warning that says Noah could suffocate from these pillows if I slap a traditional pillowcase on them from Walmart.  Still weeks later - nothing.   4 months (and counting) for disposable safety pillowcases.  Seriously. 

The verdict on the pillowcases is still out for Noah as I'm trying to make due with the 2 disposable pillowcases that came complimentary with the pillows to get you by.  Although the disposable pillowcases were not intended to get me by for 4 months but rather a week at best each or as they are soiled with drool, spit, or acid reflux (but mind you the government doesn't really care about those kinds of dilemmas in my life).  Noah is a number if even that to them.

And I highly doubt most of the caseload is a priority.  County offices have been closed for remodel since January (yes your tax dollars hard at work to make government offices PRETTY!), as a result all county employees are working for home - for SIX months - until sometime in June.   No temporary office - nope working from home.  You can't even call them - without getting a message that email is all you have because they are out of the office - AT HOME!   But this is all okay you know - it should be okay with me, it should be okay with you, it shouldn't be any big deal right?  *Enter BIG sarcasm*  

And it seems that the county can't take the time to adequately answer my emails and questions.  I'm told respite hour notes are inadequate via an email dated March 9th, and that my listing of duties isn't sufficient for providers, so we follow their example only to be told 30 days later that their example is insufficient to be copied each day as it does not offer a listing of different activities.  When I ask for clarification and additional information a response in an email:  "The example you copied is similar to what I have provided to all others" 
Which insinuates I'm the stupid one for not understanding that they keep changing the rules without proper explanation and when I ask for clarification they refuse.   Here it is 4pm and almost 24 hours after I requested a phone call to discuss their rather curt and unprofessional email, and yep they are probably too busy doing their laundry or gardening at home to get back with me. 

Oh but wait, I can't really vocalize my disdain too much because they hold the key to Noah's recent stair lift request.  And if I don't suck it up and kiss the very butts that are egging my mother bear claws on, they very well could deny the pillowcases or the stair lift or the sensory clothing or anything else Noah needs simply out of spite.   Such a double edged sword. 

Yet there's the truth of it.  The things swirling around in my head.  (Or least parts of it).  There's a lot on my mind these days. 

Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.

Tuesday, April 7, 2015

EazyHold is Essential

Bookmark and Share
We have been playing around for the last few weeks with a new product that is getting ready to launch called EazyHold.  It is a hand mobility support strap that goes gently across the back of the hand to help any person of any age that has difficulty holding and grasping objects such as spoons, toothbrushes, painting utensils, pens and pencils, toys, and even popsicles and lollipops.  I am super impressed with this product.  It is essential if you have a child like Noah who cannot hold onto objects independently while using his hands.  We've had a lot of fun in fact using it, and it's giving Noah a new sense of independence.

Noah's therapists have even started using EazyHold with him during therapy sessions, and helping him initiate play feeding himself.  Something he gets to see his little brother do on a frequent basis with his toddler kitchen toys.  Sometimes I tend to forget that Noah has a child's imagination just like any other child.  That he can't pretend that he's building a fort using empty gift wrap holders and old sheets, or pretend he's whipping up a morning breakfast and serving his parents with plastic food with tiny tea cups without help, but that his imagination is still there.  I know he'd be pretending he was riding a horse, or playing make-believe if he only physically could. 
Noah using EazyHold with his ez-pz bowl
Noah pretend play eating
I could see a lot of joy in his face, he was having fun when we were pretending to play-eat during therapy.  I seen his imagination hard at work.  Something we couldn't have really done without EazyHold allowing Noah to hold onto objects to accomplish his pretend play.   Noah has pretty high tone and he has a tendency to whip the best of gadgets off his hands flinging them halfway across the room, but EazyHold doesn't come off until we take it off.  No amount of Noah whipping his hands around or waving them about releases EazyHold.  It allows him to play and grasp utensils and hand-held tools without getting frustrated that he cannot adequately hold onto them.

EazyHold comes in many different sizes and in different diameter width depending upon the utensil or tool used, so I was able to use it on myself to see what the sensation felt like.  It is remarkably comfortable.  It's soft gel material makes it flexible and lightweight.  You don't feel like your hand is weighted down, my hand didn't sweat or feel like it was sticky after using it.  After a while I really didn't even notice it was there.  It felt rather natural.   I am loving it.

Noah's little brother Luke also seems to really love EazyHold, and although he doesn't need it, he loves to use it when Noah does and mimic what Noah is doing.  Which to a large degree is really healthy for Noah.  He gets to see that what he is doing is normal and typical and that EazyHold is a natural gadget to use.  So if you have two children you might just need to order double!
Noah's brother, Luke playing with EazyHold

Benefits include:

• Non-slip properties allow product to stay in place when secured to the handle of an implement.
• Highly stretchable, and able to fit and maintain its grip over a wide variety of implements.
• Comfortable, soft, washable and hygienic, they are dishwasher safe.
• They attach to the implement, not the hand.
• Made of one molded piece of food-grade silicone.
• Can be used on either hand.
• Great for people with limited grip strength, limited hand or finger mobility, or even missing fingers.
• Helps prevent utensils and tools from slipping from grasp during use.
• Versatile, and available in numerous sizes to adapt to a variety of hand sizes, tools and utensils.
• They assist in many activities: sporting and aquatic equipment, musical instruments, household and personal hygiene products, garden and cleaning equipment, eating and cooking utensils, paintbrushes and painting equipment, and therapeutic, medical, and rehabilitation purposes.

I think this product is going to make a huge difference to those in the special needs community.  It's brilliant. 

To register for updates when they go on sale visit: EazyHold
This is a purchase you absolutely won't regret. 


Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.