I had the opportunity to view the first episode today, via an Amazon invitation. Wasn't about to pass that up on a Friday. Nope this special needs mom spent nearly 22 minutes (commercial free) laughing and relating to a day in a life that resembles my own. And then I spent another nearly twenty-two minutes watching it again with Noah, his grandmother and Luke. They all were glued to it just as much as I was - Noah uniquely so. He has never in his life seen a family dynamic that resembles our own. He laughed and was engrossed in the show.
*** Spoil Alert ***
Speechless opens as the family moves in order to provide more resources for their disabled oldest son, JJ DiMeo, played by Micah Fowler, who also in real life has cerebral palsy. The house is less than ideal. It's doors are falling off the frames, the deck is missing, they have a cell tower camouflaged as a tree in the backyard, and their home backs up to a very busy street and train tracks. Yet in the name in the spirit of giving their special needs child all the opportunities that he deserves the entire family bites the bullet and pulls together to do the best they can with these sets of homestead circumstances.
Minnie Driver plays Maya DiMeo. She is extraordinary in her role. It is as if she literally shadowed a special needs mother for months on end, or had her own special needs child herself. Her firm and unique understanding of her character is quite amazing. She accurately depicts the fierce advocate drive that you find in most special needs mothers, mixed with a dash of humor, and sense of authenticity that makes her feel as if she is you. Minnie was an excellent choice, and I'm going to look forward to watching her speed from place to place during each episode rooting her on as she continues to avoid countless and likely well deserving speeding tickets all in the name of awareness, disability rights, and unconditional love for her entire family.
Minnie's character without so much batting an eye cares very little about her reputation of being "that aggressive and difficult mom," but instead embraces it and wears the title proudly on her sleeve. I enjoyed how she depicted our drive for change out there on the lawn of the school with her paper petition scouting for signatures all the while showing no remorse for stepping on the schools freshly planted flowers after realizing that her son's only way of entering the school building was by way of a trash ramp that the school district found was "acceptable alternative access." Minnie's "schooling" of the staff became a comical scene that not only does a great job of demonstrating many of the illogical and unfair challenges we face as parents of children with disabilities, but does a great job of giving all viewers regardless of their family dynamic something to really think about and digest. And that is the biggest thing the disability community could ever hope for with a sitcom like this. It is a teaching tool for people. I hope that it gives all viewers a half hour of entertainment mixed with food for thought so the next time they walk into someone like us they know what walking in our shoes really is all about.
John Ross Bowie, who plays Jimmy DiMeo - JJ's Dad does a great job of being Minnie's parental sidekick. You can tell his character is quite familiar with what will push his wife's buttons like the use of the word "cripple." You can see him roll his eyes and his body language says you just dug your own grave because my wife is about to have a field day with you. A strong family man who stands proudly behind his wife's efforts and knows that no matter her choices that at the heart of it all she's doing the best she can.
In the first episode we get to see the classic nut case therapist. We've all been there. I've been there way too many times I'm not even sure how I have survived some of them or Noah either... It is good to see that the show is incorporating all real elements to things that we face daily - including a batty, overexcited therapist that would love nothing more than to be fired because she just isn't in to her job - your kid - or your family.
The show also pokes fun at the classic "you are an inspiration," and "pretending to be inclusive" themes. On JJ's first day of school the family is greeted by the school principal who thinks that comparing the school's change of mascot is the equivalent to representing inclusion. The mascot has been changed from a Viking with its connotations of male aggression to a sea slug which has both male and female genitalia. The awkwardness in Minnie's expression and her quick change of topic classic of how a special needs parent would react to the strange insinuation that inclusion was in any way related to a sea slug that possessed both genders.
The first episode also explores secondary challenges to special needs parenting. I always say when you have a child with a disability the entire family has a disability and it will undoubtedly effect each family member differently. Sibling feelings and emotions are explored, bonds are shown to be powerful within the family unit, and an overall showing of support makes the family strong.
So how real is Speechless in representing the special needs community? I'd say it nailed it - at least for me.
- The DiMeo's move because they are trying to offer their child with
special needs better resources and opportunities - we moved to for the
same reasons.
- They move into maybe a less than ideal house - needs work, off a busy
street and has a camoflaughed cell tower - well isn't that a
coincidence - we bought a house that needed a little bit of work, we
live off a busy street and my City Council gifted us with
a cell tower camoflaughed as a church bell tower just a short few weeks
ago (note the sarcasm in my cell tower joy) and I'm not at all as
excited about how many bars may now be on my cell phone like Mr. DiMeo
is.
- The Dimeyo's have a marriage dynamic similar to ours - I'm the mommy
pit bull the daddy backs up the mommy at all times and can see the
volcano about to erupt when you use words like cripple or retard... or
deny our child basic rights to access. We also
bounce things off each other and provide a united front because we know
our child's quality of life is dependent upon it.
- We have a sibling dynamic which sometimes is challenging when you
must devote so much time and energy to the child that needs you the most
that your other child(ren) equally deserving of extra attention can
feel short changed.
- While I do certainly have a need for speed I've only been pulled over
once (and ticketed) coming home from Noah's hippotherapy. *Note to
self * The next time a police offer asks if you if you can financially
afford the ticket he's about to give you - say
NO, not yes!" * In all honesty I'm usually aware of the speed limit -
but have bumped up my clock in my car to be 15 minutes ahead to keep me
"on time."
- I've been known to start a petition or two, or three, or four. Or go
on public television... or give interviews to papers... or well
whatever needs to be done in the name of advocating for my child.
Although I don't think I've crushed any flowers in the
process, but I likely wouldn't feel guilty about it either if I had.
(Way to go Minnie!)
- I'm not perfect and I'm still balancing parenting two children with
very two differently physical abilities and needs. I don't always get
it right, but I'm trying hard and so is JJ's mother on Speechless.
- Noah is cognitively aware and just because he uses an AAC device for
his communication does not mean he doesn't have a voice. Noah recently
got a new speech therapist Ben, who we both really like. Ben is really
cool - even when I couldn't understand one
day what Luke was saying and I asked Ben if he happened to make sense
of what Noah's little brother was trying to say. And he sweetly replied
with a smile on his face. "He is saying God Damn." Rather than
pointing fingers at the parent Ben seemed understanding
- I've since found the source of that phrase in a children's show Luke
has on DVD titled Aussie and Ted's Great Australian Adventure. But Ben
had little hesitation in interpreting for me, so if Noah decided he
wanted to say the word "shit," I doubt Ben would
purposefully sensor him as JJ's therapist chose to on the first day of
class.
- Just because Noah is in a wheelchair doesn't' mean you have to treat
him like he's a superstar. He's not a celebrity and like JJ you don't
have to vote for him as president. (Although JJ does certainly get
creative with that suggestion in order to rescue
his little brother from a problematic situation on an amusement ride).
- We go lots of places that don't have accessible ramps or rides or anything that is disability friendly...
and like Minnie's character I'm always quick to point out the
shortcomings of any establishment that fails to meet those needs.
Love,
Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.