Noah's doctors appointment was today or how to really write about it. I could interpret today's appointment a variety of ways. Each day I believe holds a message within it for all of us. We may get that message instantly, days afterwards, years afterwards or sometimes we're so busy we fail to acknowledge that message all together. I like everyone else, am doing the best I can to find the messages I'm supposed to learn and grow from. And I don't always understand what I'm supposed to take notice of.
Someone once told me that the people in your life are the characters of your story. They come and they go, some stay for the whole ride, some pop in and out so ever briefly. They all have a purpose whether that's something positive or negative, but it's all meant to be. It defines and shapes who we are and what we become. I never really paid much attention to this really until Noah was born, and you take notice of the people that are there to support you, the people who leave, and the new ones that walk in to take their place. For everyone there is a time and place. I meet people in grocery stores, therapy waiting rooms, parking lots, or even walking around the neighborhood who all have a purpose in my story. Today's doctors appointment was one of those days where I met someone and I'm not sure if I'm suppose to learn something from them, or if I'm the one that they needed to learn something from, or if we're both mutually helping each other.
A different doctor waltzes into the room, and I of course go into somewhat of a stand-offish mode. Primarily because I have felt for many months that I can't get a doctor to follow Noah, to take interest in him, to follow him and his progress. I always feel like yet again another stranger. She said she was a doctor finishing her residency and that she'd be our doctor for the day. I told her I wanted to see the doctor we had an appointment with, she looked at me briefly with amazing eye contact and a hint of sadness and said, but I have a son like yours but he isn't doing well. She then looked at Noah with this look like he held the key to a promise she's been searching for, gently tilted her head and walked out the door to retrieve the doctor that I had requested. Maybe she was the one to become the person interested in Noah and I shoed her away, I don't know.
The doctor we were originally scheduled with comes in and measures Noah, listens to his lungs and heart, looks in his ears and weighs him. Noah is now 28.5 inches long, he does have long legs, but only weighs 15lbs 8oz and they think that he's underweight for his percentile. They think Noah needs more calories and want me to add formula to his pumped milk, and they are sending a supplement called duocal to the house from a nutritionist. I haven't researched it yet to see if the supplement has any negative effects or not. Noah looks healthy and doesn't appear like his weight is a problem. I tried to liquefy ground hamburger and pasta tonight but Noah gagged on the first spoonful. He's not ready. And I don't know when he will be.
After our appointment was over, the original doctor came back in with a sticky note giving me her home phone number, and said she was taking her son to Germany in November for stem cells. She asked if I knew of anyone that had done stem cells and I had mentioned two other mothers that I know that had gone to Costa Rica recently to have the procedure done. She asked if it worked, I told her I wasn't sure that it was still very early but that the mothers had reported progress. I almost felt like she was searching for hope in me, hope that Noah was doing well, and hope that her child would too. Even doctors are not except from the feelings that come with this journey.
They made me fill out a questionnaire today on Noah's developmental stages. I hate those questionnaires. They tell you every child, even without a disability, grows at a different rate, yet somehow they find standardized measures that they want to measure all children by. I think the only thing I even answered yes to was that Noah could socialize, but he cannot pick up a cheerio with two fingers, move toys from one hand to the other, but toys in his mouth, sit up, or roll over. The list was four pages long of me answering no to all the questions.
I still have days where I want so badly for Noah to be able to do everything that any other baby can do, where as his dad is content with just having Noah be whatever it is that he will be. I keep having these dreams about Noah. Last night I dreamt that Noah crawled for the first time on October 10th, I remember looking at the calendar, that being only ten days away I don't see that coming to fruition. I dream of him walking, I dream of him talking, I dream of him running towards me. I dream so much that it feels real until I wake up and remember I'm tucked in bed.
Hopefully they are dreams that I'll get to see come true one day.
Love,
Stacy, Chris & Noah
Thursday, October 1, 2009
Wednesday, September 30, 2009
Noah Hunts Nectar
Although Noah is cutting his bottom two teeth, I think he's been remarkably happy considering. He'll have boughts of a different cry here and there but it never lasts more than a few minutes, just enough to tell me that he's mildly annoyed. Noah has also enjoyed the wind today, he has a fascination with trees and leaves. He loves to just watch the trees blow in the wind. It's very peaceful for him, he watches with such awe like the trees are whispering to him and he's listening to every word. I love to watch him learn about life. There really is something to watching the world through a child's eyes. He's brought my attention back to things I wouldn't ordinarily pay any attention to. The way a bee dances around a flower before gently buzzing in delight, or watching an ant work so very hard to carry off an oversized leaf, or even a drip of morning dew on a blade of grass and how it clings so ever tight. Things I notice only because he brings my attention to them.
Today Noah had physical therapy with his therapist Beth. He loves the platform swing so very much. I think it has to be his all time favorite thing to do. We're still hopeful that we'll be able to get a platform swing for Noah with some help from the organization called two angels. It's two parents who founded the organization after the loss of their two precious daughters Allyson and Rachel both at the age of five from a rare form of Muscular Dystrophy called Nemaline Myopathy. My therapist warned me about the emotional effect that their brochure would have on me, but I don't think I really prepared myself for how much it hit my heart. I cried gently not to wake Noah or to allow Chris to notice one evening while reading it. The idea of preparing yourself for the loss of your child is horrendous. And it made me remember all too well the thought of us having to make a decision to let Noah go and trying to decide on a day when I thought I strong enough to say this is the day when I'd give up and let God take him home.
I don't know yet whether two angels will be able to help us, when I wrote them they indicated that their funding for the year had almost run out, but I'm hopeful that maybe if they cannot help us this year that they will keep our application on file for next year. It would be so wonderful to have that swing for Noah and I know it would help him tremendously at home.
Noah and I went on a nectar search today. His occupational therapist said we needed to find nectar for Noah's first go with the Nuby cup because it is thicker than juice. I didn't quite have the success I was hoping for. Sunflower carries organic nectar in jars, but when you shake the bottle it seems the same consistency as juice to me. I tried Safeway who carries Kern nectar in cans, but when you shake them it seems no thicker really than juice as well, not to mention it has a lot of added things I'm not sure Noah should be consuming just yet, if at all. Safeway does have Apricot nectar in a large can and when I shook it I think it sounded thicker than juice. And Noah has had apricots already and although it's not organic everything in the Safeway brand seems to be something he could have. I also considered the Naked drinks they have a mango drink that might work that is the consistency of a smoothie which I think is what we are after. I also found agave nectar but I think agave may be too similar to honey and I know you're not suppose to give babies honey until a certain age, although I don't know what age that is. To say the least I was overwhelmingly confused with trying to make the best choice so we came home with no nectar of any kind. I just don't know what to do or what would be best for Noah.
Noah has also learned to rollover voluntarily on a soft surface like the bed or the couch. He finally is willing to explore going from back to tummy. He gets stuck sometimes but he can get his arm up from underneath himself without help. He cannot do this on the floor however, maybe because the surface is too hard and doesn't allow him the give he needs to push through the movement. Nonetheless, I'm amazed that he can do it at all. Or even wants to try. He's been avoiding tummy time for a long while, to see him making efforts again is wonderful.
Tomorrow is Noah's 9 month well-being baby check-up. I'm hoping he weighs at least 16 lbs. He's so long, but still looks pretty lean. And of course I always feel like I'm going to the house of germs. Even though they have a well and sick side, it's still the same room. And we're fast approaching the season where I'm going to have to pick and chose the safe places for Noah to be in public to avoid big illnesses for him.
Please continue to keep all those special children in your thoughts and prayers.
Love,
Stacy, Chris & Noah
Today Noah had physical therapy with his therapist Beth. He loves the platform swing so very much. I think it has to be his all time favorite thing to do. We're still hopeful that we'll be able to get a platform swing for Noah with some help from the organization called two angels. It's two parents who founded the organization after the loss of their two precious daughters Allyson and Rachel both at the age of five from a rare form of Muscular Dystrophy called Nemaline Myopathy. My therapist warned me about the emotional effect that their brochure would have on me, but I don't think I really prepared myself for how much it hit my heart. I cried gently not to wake Noah or to allow Chris to notice one evening while reading it. The idea of preparing yourself for the loss of your child is horrendous. And it made me remember all too well the thought of us having to make a decision to let Noah go and trying to decide on a day when I thought I strong enough to say this is the day when I'd give up and let God take him home.
I don't know yet whether two angels will be able to help us, when I wrote them they indicated that their funding for the year had almost run out, but I'm hopeful that maybe if they cannot help us this year that they will keep our application on file for next year. It would be so wonderful to have that swing for Noah and I know it would help him tremendously at home.
Noah and I went on a nectar search today. His occupational therapist said we needed to find nectar for Noah's first go with the Nuby cup because it is thicker than juice. I didn't quite have the success I was hoping for. Sunflower carries organic nectar in jars, but when you shake the bottle it seems the same consistency as juice to me. I tried Safeway who carries Kern nectar in cans, but when you shake them it seems no thicker really than juice as well, not to mention it has a lot of added things I'm not sure Noah should be consuming just yet, if at all. Safeway does have Apricot nectar in a large can and when I shook it I think it sounded thicker than juice. And Noah has had apricots already and although it's not organic everything in the Safeway brand seems to be something he could have. I also considered the Naked drinks they have a mango drink that might work that is the consistency of a smoothie which I think is what we are after. I also found agave nectar but I think agave may be too similar to honey and I know you're not suppose to give babies honey until a certain age, although I don't know what age that is. To say the least I was overwhelmingly confused with trying to make the best choice so we came home with no nectar of any kind. I just don't know what to do or what would be best for Noah.
Noah has also learned to rollover voluntarily on a soft surface like the bed or the couch. He finally is willing to explore going from back to tummy. He gets stuck sometimes but he can get his arm up from underneath himself without help. He cannot do this on the floor however, maybe because the surface is too hard and doesn't allow him the give he needs to push through the movement. Nonetheless, I'm amazed that he can do it at all. Or even wants to try. He's been avoiding tummy time for a long while, to see him making efforts again is wonderful.
Tomorrow is Noah's 9 month well-being baby check-up. I'm hoping he weighs at least 16 lbs. He's so long, but still looks pretty lean. And of course I always feel like I'm going to the house of germs. Even though they have a well and sick side, it's still the same room. And we're fast approaching the season where I'm going to have to pick and chose the safe places for Noah to be in public to avoid big illnesses for him.
Please continue to keep all those special children in your thoughts and prayers.
Love,
Stacy, Chris & Noah
Monday, September 28, 2009
Noah's Good Friday
Sure enough just when we change Noah's therapy schedule he performs beautifully for his Friday therapist, Nikki. He probably felt sorry for me since I've been telling him the last few days I thought we'd really miss her. We practiced weight bearing activities for Noah He's doing better and is really trying. He also played with Kooshling balls that he thought were wonderful. I used to have those years ago, I'm not sure I even saved them, wish I had since he enjoyed them so much. I'm sure the dogs would also enjoy them just as much.
We got to meet another little boy that faces similar challenges as Noah named Jayden. Noah really liked watching and studying him. Jayden was so cute and has soft curly hair and the most angelic little face that makes you look right past anything that he might not physically be able to do. Or maybe I no longer see these precious special children for what they cannot do, but for what beautiful souls lie in each one of them. I look past the physical and see such sweetness in their eyes.
Today was Noah's occupational therapy. We only have one more therapy session that is Medicaid approved. If Medicaid does not approve more by next week then we'll have to take a break from occupational therapy until the approval goes through. I'd like to be optimistic and say it will happen by next week, but being the realist that I am I know that it more than likely will not happen that way. I expect that we'll have to stop our occupational therapy for a few weeks or even up to a month until we hear yes from Medicaid or longer if they happen to come back and say no for whatever reason. I wish the system wasn't like this. It should be easier than this, but it isn't. At least Noah will be able to continue on with his physical therapy in the meantime, although I love our weekly sessions with his occupational therapist, Julie. I feel like we're at a point where we are making progress, even if it's slow, Noah is responding to her and we're both learning a lot of wonderful skills from her. And if we take a break I'm sure our 11am time slot will get filled by someone else and I'll have to change Noah's routine again.
Next week we plan to try to introduce Noah to drinking out a cup. We're trying a product called Nuby that hopefully will allow Noah to transition from bottle drinking to drinking out of a cup or sippee cup. Noah still cannot hold a cup with both hands, or if he can he's not sharing that information with me yet. He won't hold his own biscuits, or popsicles, or anything really. He'll swat at his spoon during feeding but that's the best it gets for right now. I'm nervous about transitioning Noah to solid foods or drinking out of glasses. I don't think if Noah had been born without a hypoxic-ischemic injury that I would be as scared as I am now about moving forward. I try not to live in moments of fear, but I don't want us to go backwards and for me to go to fast and make Noah sick. Aspiration is still a concern, choking and gagging very much possibilities.
Noah's two bottom teeth are clearly visible today, and he's been somewhat agitated during bottle feedings and crying. Noah can't have tylenol like other babies, it never agreed with me so we're not sure if he's allergic too, and not all drugs are suitable for babies that have brain injuries. Hence why vaccinations are not possible for Noah. There are also many foods that we'll have to watch for Noah's consumption. Many people may not realize that artificial food colorings could have consequences for Noah that may differ from others. Red 40, Blue 1, Yellow 5 and Yellow 11, all have effects on the brain that Noah may be even more sensitive too. And you can't imagine how many foods contain those artificial dyes. That means no Kraft Macaroni and cheese, that means icings in cakes and sodas, popsicles, ice cream, chips, cereals, salad dressing, It's even sprayed on fruit to give them more appealing color and can even be found in shampoos, lotion and conditioners. These dyes are even in medicines and vaccinations Effects could range from hyperactivity, anger, rage, irritability, memory disturbances, violent behaviors and abnormal stages of excitement and abnormal cell growth in the brain. And shopping for things that don't contain those dyes is going to be more expensive because it forces you to buy almost everything organic and natural. It's already hard to hunt out special popsicles for Noah, special baby foods that I have to reach each label for, and if he learns to eat like the rest of us do, that will ultimately change how our family shops for groceries and what our diet is like. And not to put the horse before the wagon, but financially it will be one more thing we are going to have to consider with Noah.
Noah's personality keeps sprouting by the day. He's growing into one of the most intriguing human beings I've ever met. I want to capture that grin he gives me in the morning and burn it forever in my memory hoping to keep it just as fresh as it is today as it will be when he's a grown man. The tender sound of his cute giggle as I nuzzle his soft neck, the way he puckers his mouth when someone else other than me wants to love on him, or the way his ocean blue eyes light up every dark corner of my day. Noah, when you are old enough read and understand your caringbridge book , I want you to know that you are the very best thing I've ever done with my life. There's nothing more that I could ever do better, than you.
Love,
Stacy, Chris & Noah
We got to meet another little boy that faces similar challenges as Noah named Jayden. Noah really liked watching and studying him. Jayden was so cute and has soft curly hair and the most angelic little face that makes you look right past anything that he might not physically be able to do. Or maybe I no longer see these precious special children for what they cannot do, but for what beautiful souls lie in each one of them. I look past the physical and see such sweetness in their eyes.
Today was Noah's occupational therapy. We only have one more therapy session that is Medicaid approved. If Medicaid does not approve more by next week then we'll have to take a break from occupational therapy until the approval goes through. I'd like to be optimistic and say it will happen by next week, but being the realist that I am I know that it more than likely will not happen that way. I expect that we'll have to stop our occupational therapy for a few weeks or even up to a month until we hear yes from Medicaid or longer if they happen to come back and say no for whatever reason. I wish the system wasn't like this. It should be easier than this, but it isn't. At least Noah will be able to continue on with his physical therapy in the meantime, although I love our weekly sessions with his occupational therapist, Julie. I feel like we're at a point where we are making progress, even if it's slow, Noah is responding to her and we're both learning a lot of wonderful skills from her. And if we take a break I'm sure our 11am time slot will get filled by someone else and I'll have to change Noah's routine again.
Next week we plan to try to introduce Noah to drinking out a cup. We're trying a product called Nuby that hopefully will allow Noah to transition from bottle drinking to drinking out of a cup or sippee cup. Noah still cannot hold a cup with both hands, or if he can he's not sharing that information with me yet. He won't hold his own biscuits, or popsicles, or anything really. He'll swat at his spoon during feeding but that's the best it gets for right now. I'm nervous about transitioning Noah to solid foods or drinking out of glasses. I don't think if Noah had been born without a hypoxic-ischemic injury that I would be as scared as I am now about moving forward. I try not to live in moments of fear, but I don't want us to go backwards and for me to go to fast and make Noah sick. Aspiration is still a concern, choking and gagging very much possibilities.
Noah's two bottom teeth are clearly visible today, and he's been somewhat agitated during bottle feedings and crying. Noah can't have tylenol like other babies, it never agreed with me so we're not sure if he's allergic too, and not all drugs are suitable for babies that have brain injuries. Hence why vaccinations are not possible for Noah. There are also many foods that we'll have to watch for Noah's consumption. Many people may not realize that artificial food colorings could have consequences for Noah that may differ from others. Red 40, Blue 1, Yellow 5 and Yellow 11, all have effects on the brain that Noah may be even more sensitive too. And you can't imagine how many foods contain those artificial dyes. That means no Kraft Macaroni and cheese, that means icings in cakes and sodas, popsicles, ice cream, chips, cereals, salad dressing, It's even sprayed on fruit to give them more appealing color and can even be found in shampoos, lotion and conditioners. These dyes are even in medicines and vaccinations Effects could range from hyperactivity, anger, rage, irritability, memory disturbances, violent behaviors and abnormal stages of excitement and abnormal cell growth in the brain. And shopping for things that don't contain those dyes is going to be more expensive because it forces you to buy almost everything organic and natural. It's already hard to hunt out special popsicles for Noah, special baby foods that I have to reach each label for, and if he learns to eat like the rest of us do, that will ultimately change how our family shops for groceries and what our diet is like. And not to put the horse before the wagon, but financially it will be one more thing we are going to have to consider with Noah.
Noah's personality keeps sprouting by the day. He's growing into one of the most intriguing human beings I've ever met. I want to capture that grin he gives me in the morning and burn it forever in my memory hoping to keep it just as fresh as it is today as it will be when he's a grown man. The tender sound of his cute giggle as I nuzzle his soft neck, the way he puckers his mouth when someone else other than me wants to love on him, or the way his ocean blue eyes light up every dark corner of my day. Noah, when you are old enough read and understand your caringbridge book , I want you to know that you are the very best thing I've ever done with my life. There's nothing more that I could ever do better, than you.
Love,
Stacy, Chris & Noah
Thursday, September 24, 2009
Noah's Toys Bite the Dust
Noah detected that the sun came out today and I could tell he was itching for a ride in his stroller. So off to Target we went to just wander. Noah doesn't particularly like his stroller hood down, so even when we're indoors he has to have it up or he screams. He must feel safer that way like he's in his own little cave.
We toured the store a few times and then ran across a really nice lady with a 10 month old little girl. We compared regular baby things, she said her baby was slow to sit and gave me tips on how to get Noah to sit, I told her he had special needs and that it might be a long time and so she looked at him intently after I told her, and said nope, he's going to be fine. We both had a small conversation just about babies in general, shared a smile, and went in different boy/girl toy directions.
Noah has also been become very aware of food, he now wants to eat lunch with me too, he roots with little monkey sounds until I give in. He also started to bite his spoon today which is excellent. We want him to learn to bite and chew.
The dogs have also made their first Noah toy casualty. It's so hard to supervise them and Noah at the same time. So unfortunately I found some of Noah's toys out in the yard dead on arrival chewed up and soaked. And they were really nice toys too, I had prefered they had taken something that Noah really didn't like to play with, but I suppose everyone loves the same toys in this house. Maybe I should put Rody up higher... I'm worried.
Noah's also been watching his Einstein videos that my mom bought him. I'm so thankful that she did because he intently watches them during feedings. I pray it helps him with his speech and learning.
Thank you to all those that continue to leave supporting and sweet messages for Noah on his caringbridge guestbook, it will mean so much to him to read someday. All the positive always outweighs the negative. And I make a conscious effort to be happy each and every day to be present in the moment for Noah's sake. Although I may write about our difficult moments, our hardships, or pain it never means that I'm not thankful for each and every moment that I share with Noah. It has been my goal to share what this type of journey is like with those unfamiliar with it, those who wish to know how the small fragile little soul they fell in love with all those months ago is progressing, and to always remember that miracles are possible.
I've also attached links to some of the other families that we've connected with that have special needs children on Noah's blog site under "Noah's friends". I welcome those that have an opportunity to read their stories. The courage, strength, love and hope can often move you to tears.
I've also attached links to some of the other families that we've connected with that have special needs children on Noah's blog site under "Noah's friends". I welcome those that have an opportunity to read their stories. The courage, strength, love and hope can often move you to tears.
"What lies behind us and What lies before us are tiny matters compared to what lies within us"
Emerson.
Love,
Stacy, Chris & Noah
Wednesday, September 23, 2009
Noah the Race Car Driver
My new bedtime racing outfit
Grandma said she'd buy me my first car...
Wait do I have enough sponsors on my suit?
Ready to race! I'm a WINNER!
See you at the finish line!.JPG)
Noah in his Belly Band
Noah did beautifully in therapy today. Everyday I think Noah makes improvements. He played on the swing and tried on his belly band for the first time today. He was all smiles and was so happy the entire time. His therapist and I discussed today just having Noah with one physical therapist rather than the two he sees now. For whatever reason Noah has been particularly fussy on Fridays with his therapist Nikki. And she is truly wonderful. She sings him gentle songs, lets him even grab her long hair without ever complaining, and she offers Noah a million toys and things to make him happy, but he has none of it. At first we were thinking maybe Noah just had a problem with visually seeing me, but he doesn't do this for the other two therapists he has. So we've collectively decided that Noah will just see Beth for both of his weekly physical therapy sessions. Hopefully we'll still get to say hello to Nikki here and there, she's such a sweet person who genuinely cares about Noah and has become like extended family.
I feel so comfortable with Noah's therapists. They are an incredible team, I love how they all come together for him. They pool their ideas and thoughts, to find the very best treatment options for Noah. They really care about him, and not just as a patient, these people really love their jobs, and love these children. Noah's therapist also gave me information on an organization that might be able to help us get the platform swing that we so very much want to install in the basement for Noah's therapy. It was so nice to be pointed in a direction.
I feel so comfortable with Noah's therapists. They are an incredible team, I love how they all come together for him. They pool their ideas and thoughts, to find the very best treatment options for Noah. They really care about him, and not just as a patient, these people really love their jobs, and love these children. Noah's therapist also gave me information on an organization that might be able to help us get the platform swing that we so very much want to install in the basement for Noah's therapy. It was so nice to be pointed in a direction.
We also got information on a equipment clinic that Children's Hospital is doing in November. It's on a Saturday and it's in Glendale, so I'm not sure if we'll be able to make it, but I'm so glad that his therapists offer me every piece of information that they can. I'm trying to be one big sponge and soak up every single ounce of information and advice they offer. Noah also sat by himself for a bit on the swing unassisted, every week he does something just amazing. I'd love just to cry tears of joy sometimes and if I didn't have an audience at therapy I'd probably do just that. Noah brings me to my knees with his smallest of achievements. This sweet little baby has no idea how much he touches my heart. Noah is the most special person I've ever met in my life. I don't know that he recognizes his small successes, but I try to make sure he knows that he's doing a beautiful job at everything he does.
As odd as it sounds it is often very comforting to go to therapy, to see other parents with kids with special needs, often times we don't speak but our expressions are the same, our eyes meet and we connect without a spoken word. I remember once our therapist Beth telling me once when I was apologizing I think for Noah and I having a bad day and she said I didn't have to apologize because I was amongst those that understood. It was so very comforting of her to say.
I remember so vividly someone telling us that we'd be better off if Noah had not survived. I think about that often how someone could be so bold to say such a thing. Yet I shouldn't be shocked these days at what some say. Chris and I have gotten a variety of statements since Noah has been born, sometimes I think people mean well they just don't think about what they're saying before the words spew out of their mouths and the damage has been done.
I keep thinking about those mothers that I see and know that have children that face harder challenges than Noah. The children that cannot track, that have seizures, GI tubes, that are completely paralyzed. I think it's important to remember for everyone that there is always someone that has it worse than you do. We often complain about things we shouldn't. In the big scheme of things there are a lot of things that simply do not matter. The mother that has to get up at two in the morning because her child is running at 105 temperature, is having seizures and she's trying desperately to suck the secretions from her child's lungs with a machine that is no longer working, the young man that is burned beyond recognition and has no use of his crumbled hands, or the woman dying of heart failure and will not live to see another Christmas. They all have the right to complain yet they rarely do.
I want to teach Noah not to sweat the small stuff. You can never change the way someone thinks, only the way you think. I will have to teach Noah to have thicker skin, not to fall prey to someone's wicked words or unkind glances. I have to teach him to be strong, to find purpose in each day without using his disadvantages as an excuse not to be all that he can be, and to share his inspiring message with the world.
I've attached some pictures of Noah in his belly band on the swing at therapy. He was being such a little show off today.
Love,
Stacy, Chris & Noah
I've attached some pictures of Noah in his belly band on the swing at therapy. He was being such a little show off today.
Love,
Stacy, Chris & Noah
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