When you become a special needs parent, so much changes. There are days
when you literally ache to feel and be like other parents. Do all the
normal things that everyone else gets to experience with their
children. You watch on the sidelines as things pass you and your child
by. Sometimes to push away the sadness you'll even go as far as to
convince yourself that you are better off without those experiences.
And maybe - just maybe you are better off - but then you start to think
about your children how much better off are they? Never to get an
invite? Never to feel included? Wanted? Thought of....
For all
of Noah's life we've quietly celebrated birthdays and special events
from the comfort of our own home, with only our own family. Special,
yes. But sometimes you always wonder what life is like on the other
side of birthday invitations, party favors and lots of other children
singing Happy Birthday. Because of the nature of Noah's disabilities
he's rarely invited to parties. We attended our one and only birthday
party three years ago.
There
hasn't been any invites since. And because of Noah's significant
sensory issues I knew that we'd never be able to host a birthday party
for Noah or even for Luke for that matter at our own home as Noah would
see it as an invasion of his personal space and just throw up the entire
time. I almost hung up my hat to the idea that a party of any nature
would be in my children's future. But I seen a flyer one day when I was
taking Luke to swim class. My fingers reluctantly picked it up, in my
imagining the fun Noah and Luke would have. But, the price tag for a
pool party still a bit beyond reach. I almost left it behind but
figured I'd take it home and stew on it.
It sat on the counter
for days. I came up with a million reasons why not; who would even
come? I put out a general feeler with a friend we had recently met,
Lindsey, the CEO of ez-pz, knowing she had three beautiful little boys
to see if she'd be interested in attending if I was able to fundraise
for the fee to rent out the pool for a party. Little did I know that
my inquiry for an invite would lead to this amazing gift of her hosting a
party for Noah and Luke. Luke's birthday is in April and Noah's in
December - but she wanted to give them the gift and experience of what a
birthday party was like.
Feeling like a child in a candy
store, everything was so full of excitement. I hadn't coordinated a
party since before Noah's birth, and while a tremendous amount of work, I
enjoyed hosting house parties and entertaining. I felt that spark
ignite. That flame that you thought died out but didn't realize was
just burning low. I found a handful of friends to invite for the boys,
mostly those who have walked into our lives for special reasons; to help
Noah with therapy; former neighbors that shared the same special needs
journey, a very special photographer that took foundation pictures of
Noah when Luke was only 3 months old, and the ez-pz team and staff.
I
knew that this would bring the boys a lot of joy. Noah, especially who
could safely and comfortably be around lots of other children while
being in the pool - as Noah's sensory difficulties are different while
in water and it's easier for him to self-regulate. A mixture of typical
children and children with special needs were there, the very best of
both worlds. Although, I didn't want to send out "birthday" invites
because to me it was just a gift in itself to be surrounded by others,
the ez-pz team took up a collection of birthday cards and some gifts for
the boys. And they arrived with very special cupcakes from Nomélie
Cupcakes who donated the sweet treats for their party.
It lasted
two hours, but felt like it went by as fast as a flash of light... a
true sign that you wish the moment would last forever. Lots of fun in
the water, splashing, swimming, parents and children.... my normal.
Something I had longed to be able to give the boys for a long time.
Another dream come true. We had three lifeguards, two that work each
with Noah and Luke so they were familiar faces, and it was so wonderful
to have them at the party. They made it feel complete, as I've grown
rather attached to them. They may not really know it, but they feel a
bit like family. I cling to those that care like a life-line that
prevents me from sinking. Caring hearts sometimes feel extinct, so when
I find them I never want to let them go.
We had an amazing
attendance, all but one was able to make it. You always wonder how will
it go. But it couldn't have been any better. Everyone was happy and
enjoying themselves. We had light snacks, chips, fruit and veggies,
with lemonade. Tablecloths that we had held onto way before Noah was
even born finally got to see the light of day. Luke and Noah came home
with some new treasures, but most importantly a pocketful of memories
that they'll remember for a lifetime.
I sat and opened the
collection of cards for the boys. I'm not even sure how ez-pz did it.
Twenty-eight cards! All filled with incredibly heartfelt loving
birthday wishes and messages. Thank you to everyone who made this day
possible. Ez-pz is more than just a company with a fantastic product.
They are making a difference in so many lives and I will always be
forever thankful for the difference they made in Noah and Luke's life.
A first party... when life is sweet soak it in.
Love,
Noah's Miracle by Stacy Warden is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.